Useful Information

null

Support

We have a dedicated team of volunteers who will try and help the best they can for any help you need.  All support is provided through our public Facebook support group at

https://www.facebook.com/groups/156709671507072

Reported Symptoms

The following symptoms have been reported by many of our mesh members and are linked to their mesh implants: –

ADVERSE REACTIONS

  • Punctures or lacerations of vessels, nerves, structures or organs. This includes the bladder, urethra or bowel which may require surgical repair.
  • Transitory local irritation at the wound site may occur.
  • As with any implant, a foreign body response may occur. This response could result in extrusion, erosion, exposure, fistula formation and/or inflammation.
  • Mesh extrusion, exposure, or erosion into the vagina or other structures or organs.
  • As with all surgical procedures, there is a risk of infection.
  • As with all foreign bodies, PROLENE mesh may potentiate an existing infection.
  • Over correction, i.e., too much tension applied to the tape may cause temporary or permanent lower urinary tract obstruction.
  • Acute and/or chronic pain
  • Voiding dysfunction
  • Pain with intercourse which in some patients may not resolve.
  • Neuromuscular problems, including acute and/or chronic pain in the groin, thigh, leg, pelvic and/or abdominal area may occur.
  • Recurrence of incontinence
  • Bleeding including haemorrhage, or hematoma.
  • One or more revision surgeries may be necessary to treat these adverse reactions.
  • PROLENE mesh is a permanent implant that integrates into the tissue. In cases which the PROLENE mesh needs to be removed in part or whole, significant dissection may be required.

OTHER ADVERSE REACTIONS

  • Seroma
  • Urge incontinence
  • Urinary retention
  • Adhesion formation
  • Atypical vaginal discharge
  • Exposed mesh may cause pain or discomfort to the patient’s partner during Intercourse
  • Death

This list is not exhaustive, and it is known that mesh suffers can experience a multitude of these symptoms.  Many of these issues are known to affect men, women and children alike.  This list does not include conditions such as fibromyalgia, lupus, diabetes, suicidal thoughts and lifelong sepsis battles.

Medicines

Due to the severity of adverse reactions to surgical mesh implants, lots of mesh sufferers have had to take many of the following medicines to try and cope with their symptoms and to try and function better: –

ALLERGIES
Cetirizine
Chlorpheniramine
Clarityn
COLORECTAL / BOWEL PREP
Buscopan
Domperidone
Lansoprazole
Laxido
Mébéverine
Mintec capsules
Movicol
Omeprazole
Phosphates Enema
Picolax
Spasfon
DERMATOLOGY
Acyclovir
Balneum
Betnovate
Double base
Skinoren
White soft paraffin
EYES
Celluvisc carmellose sodium 0.5
GYNECOLOGICAL
Bactigyn
Canesten
Dalacin cream
Duphaston
Estriol
LBF no sting barrier spray
Ovestin
PolyGYNax
Progestagel
Surgestone
Vagifem
HEAMOSTATIC ISSUES
Dicynone
Endotélon
HORMONAL
Dygesterone
Exacyl
INCONTINENCE
Tena Comfort
INFECTIONS/ ANTIBIOTICS
Clarithromycin
Co-amoxiclav
Doxycycline
Erythromycin
Fluconazole
Metronidazole
Nitrofurantoin
Phenoxymethylpenicillin
Trimethoprim
NEUROLOGICAL ISSUES
Acetazolamide
Betahistine
Provigil
Topiramate
PAIN MANAGEMENT
Accupan
Amitriptaline
Buprenorphine
CBD Oil
Codeine Phosphate
Dextropropoxyphene Paracetamol
Dihydrocodeine
Duloxetine
Duragesic Fentanyl
Gabapentin
Ibuprofen
Ketoprofen
Lidocaine plasters
Lignocaine infusion
Matrifen
Mefenamic
MST
Neurontin
Nortriptyline
Oramorph
Oxycodone
Paracetamol tablets
Paracetamol infusion
Ponstyl
Pregabalin
Tramadol
Zimovane
Zomorph
Zydol
RECTAL ISSUES
Diltiazem 2%
Rectogesic
SLEEP
Diazepam
Fluoxetine (Prozac)
Xanax Alprazolam
TO RULE OUT DEPRESSION ANXIETY & TO AID SLEEP
Cetirizine
Zopiclone
THYROID ISSUES
Levothyroxine
UROLOGY
Oxybutynin Hydrochloride
VITAMIN DIFFICIENCY
HUX

Aids & Adaptions

Our members have found the following aids and adaptions useful with managing their day-to-day life with mesh: –

TO AID MOBILITY
Action 3 manual wheelchair
Combination channel ramp for wheelchair or PCI ramp
Electric wheel-chair
Ergonomic walking stick
Grab rail for doorways
Metal half step
Mobility scooters
IN THE BATHROOM
Commode
Glideabout commode
Folding bottom wiper
Height adjustable shower chair
Mowbray toilet frame with moulded seat
Slatted bath board
IN THE BEDROOM
Banana-board
Curved transfer board
Eclipse overlay mattress pump
Hospital bed
Inflatable Mattress
Tamora alternating overlay mattress
Transfer belt
Trinty plus mattress
FOR COMFORT
Elbow crutch, comfy handle
Fit Wobble Cushion
Heat gels
Hot water bottle
Mini Tens machine
Multi-purpose raiser for sofa
Perching stool
Repose cushion with pump

Therapy putty

White noise deflectors

Life changes our members have found helpful

A number of mesh suffers have discovered that eating organic/following a plant-based diet along with fruit, nuts and pulses, has helped relieve some of their symptoms and made them feel better and more alert.  We know that organic fruit and vegetables are more expensive than non-organic, but by reducing your meat intake (not necessarily all) but more importantly the processed foods, these costs would compensate buying organic.

Lastly, individuals have reported that cutting out some of the medicines prescribed to ‘ease’ the symptoms, has helped considerably as the side effects can often create new/exacerbate the issues you are experiencing.